OIQoL - Calculating quality of life for children with Osteogenesis Imperfecta
The OIQoL is a paediatric disease specific quality of life measure specifically for children with Osteogenesis Imperfecta. The OIQoL is suitable for 6-18 year olds and is completed by the child. The questionnaire has six dimensions; being safe and careful, reduced function, fatigue, pain, fear and life skills, and a total of 33-items.
The OIQoL is a paediatric disease specific quality of life measure specifically for children with Osteogenesis Imperfecta. The OIQoL is suitable for 6-18 year olds and is completed by the child. Younger children can have help from a parent/carers with reading, but should be encouraged to answer the questions themselves.
The questionnaire has six dimensions; being safe and careful, reduced function, fatigue, pain, fear and life skills, and a total of 33-items.
The items were developed from interviews and focus groups with children who have Osteogenesis Imperfecta and are written in the language they used.
Dimensional and total scores are based on a 0-100 scale, where a high score represents better quality of life. Items are scored on a five level Likert scale (always, most of the time, sometimes, not much, never).
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swap_vertical_circlelibrary_booksReferences (1)
- Hill (2014), Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study, Health and Quality of Life Outcomes, 12:54
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